On Dec. 7, 2010, the U.S. House of Representatives passed a simple resolution, H.Res. 1264, whereby the House resolved that March would be the month to designate as National Essential Tremor Month “for the purpose of raising awareness about the Nation’s number one neurological condition, affecting approximately 10 million Americans.”
At the time, the House recognized that “essential tremor interferes with a person’s ability to perform activities of daily living such as grooming and writing, and in approximately 5 percent of cases, is totally disabling. “
For 2015 Essential Tremor (ET) Month, Tremor Action Network (TAN) has created the hashtag #MARCH2015_4ET, asked the ET community to tell their story, and challenged Facebook, Twitter and Yahoo followers to participate in the ET Challenge:
- Each day of March, share with TAN, and/or on your Facebook page and Twitter feed: “One thing that your tremor makes more difficult.”
Essential Tremor Challenge: Share One Thing
The ET Challenge has not only sparked many diagnosed with ET to share their challenges, but also to post their suggestions and real solutions in handling their daily activities of living with a physical challenge.
Individuals with ET have shared insights about their inheritance of a familial tremor, how they paint with oils, and specific products they use for drinking from a cup, such as custom made straws.
Other helpful items they have shared include a specialized chair, keyboard tray and mouse pad with wrist rest for using a computer; software to steady a computer mouse; a custom-made spoon; flatware utensils with thicker handles; a stabilizing device that includes a regular-size spoon, a large soup spoon and a fork that have interchangeable attachments; a password manager that makes it easier for shaky hands to create online accounts; electric tooth brushes that have fatter, easier-to-grip handles; electric razors that make it easier to shave with unsteady hands; can openers for hard to open canned goods; plastic wrap that’s easier to seal food; and magnetic shirts that make buttoning a snap, just to name a few.
While H.Res. 1264 stated that “research shows that people with essential tremor have a higher incidence of depression,” the TAN ET Challenge has positively enticed ET patients to share their creativity.
TAN is pleased that those with ET are proactively participating in #MARCH2015_4ET.
TAN can help you with or without a diagnosis. The public benefit organization is “Shaking the World to Find a Cure.”
Editor’s note: Read TAN’s “tell your story” featuring Nannette Halliwell, at http://tremoraction.org/2014/05/advocate-1/. Then learn how to share your own personal story by registering for “True Help Telling Your Story,” at Webinar.Allsup.com.
You didn’t have to have dodged bullets and bombs in a combat zone to qualify for veterans disability benefits.
The U.S. Department of Veterans Affairs (VA) reminds military veterans that they may qualify for disability benefits if they were exposed to a wide range of environmental hazards during military service if this exposure resulted in a disease or injury. I recently wrote about how Agent Orange is back in the news, but the definition of an environmental hazard extends far beyond the defoliant used in Vietnam. Also included are:
- Asbestos: Members of certain occupation military specialties may have come in contact with asbestos during mining, milling or shipyard work. Some veterans were exposed to asbestos when entering older, damaged buildings in Iraq and other countries.
- Contaminated drinking water: Water systems at Camp Lejeune, North Carolina, were contaminated with chemicals from at least 1957 through 1985. There is some evidence that the water may be linked certain diseases.
- Specific environmental hazards: The VA also warns veterans that environmental exposure may include contact with burn pits, particulate matter, chemical fires and waste disposal systems.
- Ionizing radiation: Some military members may have been exposed to radiation if they participated in nuclear weapons testing. Certain diseases may develop after radiation exposure.
Find more information about applying for veterans disability benefits on the VA website.
Veterans Disability Appeal
On the other hand, Allsup may be able to help if you already went through the VA process and were denied disability compensation, or if you received a lower rating than you believe you deserved.
Our VA-accredited Claims Agents work with veterans to successfully file appeals and receive the highest possible rating level of VA disability compensation. Brett Buchanan, an Operation Iraqi Freedom veteran, heads our disability appeals service.
Click here for a free VA disability evaluation or call (888) 372-1190.
Tell them the Old Sarge sent you.
Living with a rare disease can feel isolating, but in fact, 1 out of every 10 people has a rare disease.
That’s one in every crowded elevator. Four on every full bus. Thirty million people in the U.S. alone.
With so many people impacted by rare diseases, and so much recent progress in medical science, you might think that most rare diseases would be treatable. In fact, only about 250 of the 7,000 identified rare diseases have available treatments. That’s less than 5 percent. In addition, many of these diseases are unknown to the general public.
On Feb. 28, 2015, Rare Disease Day, individuals whose lives have been touched by a rare disease will join together to tell their neighbors, communities and the world what life with a rare disease is like.
The Pulmonary Hypertension Association is proud to partner with the National Organization for Rare Disorders in support of Rare Disease Day.
Pulmonary hypertension (PH) is a complex, potentially fatal lung disease that causes high blood pressure in the lungs, making it difficult to receive enough oxygen and forcing the heart to work harder. This can lead to right heart failure or death. Symptoms of PH include shortness of breath, fatigue, and in later stages, fainting. Because the symptoms are similar to those of more common conditions, PH patients often visit multiple doctors and wait two years or more for an accurate diagnosis. Though there are a dozen treatments for PH, there is no cure.
Individuals living with PH are forced to chart a new normal for their lives. For some that means restricting activity and taking complex cocktails of medications. For others it means not being able to walk up stairs or lift their children without the risk of passing out.
‘PHight’-in For A Better Life
Despite these obstacles, the PH community is full of people who choose to “PHight” for a better life for themselves and others living with rare disease.
- “It’s so rewarding to work on the Stanford Race Against PH every year. It’s inspiring to see the effort and enthusiasm from the PH community,” said Kristi Kerivan.
- “I’m making purple cupcakes with PH on top and wrapping the awareness bracelets around them! I’ve been fundraising…Let’s buy a cure!” said Jennie Scott Heineman.
- “As a patient, being active in advocacy gives me another way to fight PH besides the physical fight. We all have the right to be heard,” said Perry Mamigoninan.
On Feb. 28, please join those living with pulmonary hypertension and the approximately 7,000 other rare diseases to spread the word about the urgent need for rare disease research and treatment.
To learn more about Rare Disease Day visit www.rarediseaseday.us.
To learn more about pulmonary hypertension visit www.PHAssociation.org.